We’re pleased to announce that our charity of the year for 2021, is SMA UK.
Spinal Muscular Atrophy, or SMA, is a genetic condition that makes the muscles weaker and causes problems with movement. Diagnosis for type one SMA in babies, is end of life under 2 years old.
This is a charity close to Teledata’s hearts after our colleague and Teledata finance manager, Michelle’s niece was diagnosed with type one before her first birthday. Thanks to the wonderful 24 hour care and dedication of her parents, Michelle’s niece turned 10 years old last year!
Spinal Muscular Atrophy is a cruel degenerative, terminal disease with little awareness and not enough funding for research, so throughout 2021 we are going to try and raise as much money as we can for SMA UK.
Established over 30 years ago, SMA UK is a charity that supports, campaigns and advocates so that everyone affected by Spinal Muscular Atrophy can access the best care, services and treatments, and benefit from continued research. The charity offers adults, young people, parents, relatives and friends emotional support, practical advice and guidance from its experienced team and provides reliable health and social care information about SMA. They also provide and distribute free multisensory toy packs for infants who are diagnosed with SMA.
Watch this space for our fundraising antics and ideas, and if you would like to make a donation, you can access our Just Giving page here.